5/3/06
Hi everyone. We are currently considering treatment options:
1. Georgetown University study using drugs similar to those denied by our fine insurance company
2. Treatment at local oncologists office using drugs known to slow the tumor growth.
3. Going to Acapulco or Cancun to rest in the sun and eat great Mexican food for a few months.
Leisa is much more comfortable now after 5 days at Suburban hospital treating back pain caused by a very pissed off tumor on her spine (L2). She's home and doing quite well. Radiation has shrunk the tumor and it should continue to shrink over the next month. The disease combined with pain medications makes her very tired most of the time. If you visit, please keep it short (15 minutes is good, half an hour is too long).
If you google "cholangiocarcinoma", you can read about leisa's disease. You will find there really are no effective treatments. Its a tough damn cancer. We need to get very lucky.
The next two weeks will be relatively relaxing as we find out if leisa is allowed into the Georgetown study. Treatment is some kind will proceed regardless.
The hundreds of cards and well wishes are truly appreciated and have had a very positive effect on leisa's spirits. Thank you so much. The maturity expressed by some of her students has been remarkable and speaks volumes of their parents, the church, and the school. All should be proud.
The nail banging from the construction of our new front porch is a nice distraction for me. I am often outside making sure the builder and his crew are doing everything perfectly.
So, please stop by. leisa loves to see people but keep it short please.
Jeff
1. Georgetown University study using drugs similar to those denied by our fine insurance company
2. Treatment at local oncologists office using drugs known to slow the tumor growth.
3. Going to Acapulco or Cancun to rest in the sun and eat great Mexican food for a few months.
Leisa is much more comfortable now after 5 days at Suburban hospital treating back pain caused by a very pissed off tumor on her spine (L2). She's home and doing quite well. Radiation has shrunk the tumor and it should continue to shrink over the next month. The disease combined with pain medications makes her very tired most of the time. If you visit, please keep it short (15 minutes is good, half an hour is too long).
If you google "cholangiocarcinoma", you can read about leisa's disease. You will find there really are no effective treatments. Its a tough damn cancer. We need to get very lucky.
The next two weeks will be relatively relaxing as we find out if leisa is allowed into the Georgetown study. Treatment is some kind will proceed regardless.
The hundreds of cards and well wishes are truly appreciated and have had a very positive effect on leisa's spirits. Thank you so much. The maturity expressed by some of her students has been remarkable and speaks volumes of their parents, the church, and the school. All should be proud.
The nail banging from the construction of our new front porch is a nice distraction for me. I am often outside making sure the builder and his crew are doing everything perfectly.
So, please stop by. leisa loves to see people but keep it short please.
Jeff
posted by Jeff at 3:37 AM
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